She got out after two weeks, but this time things were different. The chemo as well as the cancer began destroying the good parts of her blood, like the platelets and hemoglobin, and the cancer increasingly stopped responding to chemo.
It was such an emotional roller coaster, every few days she’d do bloods, they’d look slightly improved straight after chemo – which would raise our hopes again – and two days later, the numbers were bad again. And I had to keep breaking this news to her, with my eternal optimism becoming more desperate each time. It got to the point over the next month or so, where the cancer became, what they termed, “very aggressive” and refractory (not responding to treatment).
I stopped writing on my website around this stage.
My focus turned to finding solutions. I became fixated on her blood results. My world became consumed with terminology I ‘d never even heard of, let alone knew what it meant. Horrid mouthfuls like nephrology, hypercalcemia, hyperkaemia, hypogammaglobulina, thrombocytopenia, cytotoxic. Words I’d be happy to never hear again.
I spent a great deal of time pouring over her complex blood test results several times a week working out how to get the abnormal results better.
I researched all her different medications and chemos and their many, horrible side effects. I researched different foods that helped to improve iron, or helping increase kidney function, to natural remedies that help kill myeloma cells like curcumin and trying to nag my Mum on a regular basis to do these things.
My normal response to any intense situation is to learn as much as I can about it, so I can understand it, and therefore make informed choices.
In September she went home. She started dialysis every second day, for six hours. It kept her alive. But it made her sick, it gave her nausea, and headaches and chills. And this was life for a few weeks: Traveling to a dismal hospital, 3 times a week for 6 hours a day dialysis. She became increasingly quiet from them on.
I’m crying now writing this, I cried a lot then. She started texting us less, not able to keep up with my “Momma DRINK WATER” and “did you take your medication” nagging texts. All my it’s going to be okay texts stated going unanswered. She knew what was happening.
In early October, her specialist called me and told me her blood results over the phone. Her blood results that showed the myeloma load, were astronomical. They were doubling every day. The myeloma was out of control. He told me as I was crying that they were stopping treatment, and she had about one week to live.
The next day me, my sister and my step dad and Mum, we went to a Pallative care appointment. The appointment was in the same area of Peter Mac, we had been so many times over the years. She and I had laughed so many times in that waiting room. Often we were getting good results. And today, we were here to plan her death.
She held my hand tightly in the appointment, and for the first time in my life, I let her. It was the only time we ever held hands. And we left Peter Mac for the final time.
That one week estimation, turned into three. Me, my sister and my Aunty (my Mum’s sister) stayed here, my brother came down from QLD which I could write 1000 words on this time alone. It was so bloody hard. On another hand, so full of love.
Two days after my brother arrived, she died in his arms, she’d been waiting for him.
The few months after that were a blur. The funeral. Processing the unprocessable. We scattered her ashes on her 70th birthday in April 2024, 6 months after she died.